I have a great way for all of us to meet up have a beer (or 2,...or 3) and be helping out kids with Cystic Fibrosis at the same time......how you ask. well I have partnered up with the Cystic Fibrosis Foundation to rase money when I go to the BAJA 1000 this year. one of the ways that we can rase money is a event called Tampa Tailgate Kick-off to a cure. we will be showing off the rigs that we will be going to baja in and telling everyone about the trip last year, and that this year one of the trucks will be a offcial Chase Truck for team McMillin!!! there will also be a 4x4 truck show for all 4x4 trucks, that right heep's too. ALL THE FOOD YOU CAN EAT FROM 30 LOCAL RESTAURANTS. AND THE BEST PART ALL THE BEER YOU CAN DRINK YES ALL THE BEER YOU CAN DRINK!!!!!!! ALL YOU HAVE TO DO IS BUY A TICKET AND REGISTER YOUR TRUCK FOR THE SHOW. The tickets are $60 per person but all of the money goes to help find a cure. this is a small price to pay for all the fun that will be had just making fun of heep's and the free food and beer. all of the guy's that are going on the trip to baja are telling all the local clubs about this event (jeep's, land rovers and anything else that goes into 4L) so we need a lot of toyotas to be there too
any ? call (813) 249-2111 Jamie Songy or me (813) 417-2707
to get your TICKETS call (813) 249-2111 Jamie Songy or go to tampa.cff.org/tampatailgate
2007 Tampa Tailgate Kick-off to a Cure
Indoor Gourmet Tailgate / Outdoor 4x4 Truck Show
Honorary Co-Chairs, Matt and Melissa Bryant
Buccaneers vs. Seahawks (in Seattle)
Raymond James Stadium – West Club Level
Sunday, September 9, 2007
Gates open at 3 p.m.
Arrgh mate, The 6th Annual Tampa Tailgate Kick-off to a Cure brings a bounty of local food and fun! The Tampa Bay Buccaneers will provide the entertainment, as they battle for their 1st win of the 2007 season, in Seattle. Join us as we cheer them on, from home, at Raymond James Stadium – West Club Level.
Before the Game:
The Sunday afternoon fun, presented by Bright House Networks and sponsored by the 13 Ugly Men, will begin with a pre-game Pep Rally hosted by retired NFL greats from around the area.
During the Game:
During the game, hundreds of fans will be enticed with an indoor tailgate gourmet featuring signature dishes from local restaurants and caterers. And no one will be left thirsty with plenty of complimentary beer provided by Pepin Distributing, Wine provided by Republic National Distributing Company, and soft drinks provided by Coke.
Halftime:
While our team is strategizing during halftime, the fans will bid on fabulous silent auction prizes, featuring sports memorabilia and great getaways. Outside, fans will vote on our 4x4 Off-Road Truck Show and meet local Off-Road Video Director & Producer, Cory Frisco of Off-Road Fever.
4x4 Off-Road Truck Show:
Just outside the West Club Level, we will be showcasing some local 4x4 Off Road Trucks. Join the Suncoast Flatlanders, Florida Land Rover Club, and the Florida Land Cruiser Association, as they rally support for Team CFF, an official Chase Truck in the Baja 1000 (Team McMillen), led by Michael Lokey of Lokey Trucks.
The evening will wind down with marvelous desserts and, we predict, a big Buccaneers’ win!
and if you don't know what Cystic Fibrosis is here you go
Living with Cystic Fibrosis
Cystic Fibrosis is a life-threatening genetic disease that affects the lungs and digestive system of its patients. Most devastating perhaps, is the effect that cystic fibrosis has on the patients’ entire families. The entire family of a patient must bear the emotional, logistical and financial burden of this disease without a cure.
This We were in the process of potty training and we noticed an orange oily substance on top of the water after his bowel movement. Our pediatrician sent us to a pediatric GI specialist. Tests for parasites came back negative. Abnormal digestive patterns noticed by the parents may indicate a need for The next step wasa “sweat test”. Results may determine if the child has cystic fibrosis. As it is for many families, this can a devastating diagnosis; no parent wants to hear that a because of their genetics, their child will need to endure a chronic disease. Cystic fibrosis is an on-going expense, and costly even for patients with adequate health insurance.which is a standard test for CF. The test came back with a high result. Our son was given enzymes right away while we were sent to a CF specialist who conducted other tests confirming a positive with the mutation of the CF gene.
When someone is diagnosed with cystic fibrosis, their routines must change. Daily nutritional and breathing treatments require planned and consistent scheduling. In addition, regular visits to specialty doctors and periodic hospital visits often become part of a lifelong schedule. Cystic fibrosis patients may be required to take as many as 15-20 enzyme tablets before each meal and additional tablets whenever any food is eaten to help the pancreas digest fat, protein and carbohydrates. Without this supplement, the body would not be able to process the nutrients and the patient would suffer from malnutrition. Cystic fibrosis patients are also required to take special vitamins to aid in their nutrition.
The lungs are also severely affected by cystic fibrosis. Twice-daily breathing treatments consist of several inhaled medications, nasal sprays to keep the airways clear, and chest percussion therapy (CPT). These chest percussions help release any mucus that may be in the airways move up and out of the lungs, preventing possible infection. CPT was once done by hand but now can be done using a vibrating vest, which can cost several thousand dollars. Even with the vest, these treatments take up to 30 minutes per session. These sessions occur both in the morning and the evening.
Every family with cystic fibrosis has to plan their activities around these series of costly treatments, medications and hospitalizations. Each family meal or snack, party, vacation, choice of school or field trip, has to be planned with cystic fibrosis treatments in mind.
Thanks to the research program of the Cystic Fibrosis Foundation, a child born with CYSTIC FIBROSIS today has greater hope than those born in the past. The mission of the CYSTIC FIBROSIS Foundation is to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease. There are currently 5 approved therapies for CYSTIC FIBROSIS patients with about 30 therapies in their research pipeline.
The CYSTIC FIBROSIS Foundation is the very model of an efficient charity, with $.90 of every dollar raised spent on research, patient care centers and services. This donor-supported organization raises funds through a series of local special events, including the Great Strides series of walks. Information can be found at
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Cory Frisco
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